Lists 101 Hints for "Help-With-Ease" for Persons with Neuromuscular Disorders (MDAUSA.org) Provides tips. 7-04 Muscular Dystrophies - Descriptions (MDAUSA.org) Provides descriptions and summaries of the nine dystrophies. 7-04 Muscular Dystrophy - Resources (Medline Plus) Provides dozens of links by topic. 7-04 Types of Neuromuscular Disorders (Muscular Dystrophy Family Foundation) Provides information on Acid Maltase Deficiency, Amyotrophic Lateral Sclerosis (ALS) AKA: Lou Gehrigs Disease, Ataxia, Becker Muscular Dystrophy, Carnitine Deficiency, Carnitine Palmitoyl Transferase Deficiency, Central Core Disease, Charcot Marie Tooth Disease (CMT), Congenital MD, Congenital Myasthenic Syndrome, Debrancher Enzyme Deficiency (Forbes Disease), Dejerine-Sottas Disease, Dermatomyositis, Distal MD, Duchenne Muscular Dystrophy, Emery Driefuss Muscular Dystrophy, Facioscapulohumeral Muscular Dystrophy (FSH), Fibrodysplasia Ossificans Progressiva (FOP), Hyperthyroid Myopathy, Hypothyroid Myopathy, Inclusion Body Myositis, Lactate Dehydrogenase Deficiency, Lambert-Eaton Syndrome, Limb Girdle Muscular Dystrophies, Mitochrondrial Myopathy, Myasthenia Gravis, Myoadenylate Deaminase Deficiency, Myotonia Congenita, Myotonic Muscular Dystrophy, Myotubular Myopathy, Nemaline Myopathy, Oculopharyngeal MD, Paramyotonia Congenita, Periodic Paralysis, Phosphofructokinase Deficiency, Phosphoglycerate Kinase Deficiency, Phosphoglycerate Mutase Deficiency, Phosphorylase Deficiency, Polymyositis, Spinal Bulbar Muscular Atrophy (Kennedy's Disease), Spinal Muscular Atrophy (Adult), Spinal Muscular Atrophy - Type 1 (Infantile), Spinal Muscular Atrophy - Type 2 (Intermediate), and Spinal Muscular Atrophy (Juvenile). 7-04 Papers Facioscapulohumeral Muscular Dystrophy (FSHSociety.org) "Facioscapulohumeral muscular dystrophy (Landouzy-Déjérine disease) is an inheritable muscle disease, commonly called FSH or FSHD." 7-04 Muscular Dystrophy - Definition (KidsHealth.org) "Muscular dystrophy (say: mus-kyoo-lur dis-troh-fee) is a disease in which the muscles of the body get weaker and weaker and slowly stop working." 7-04 Muscular Dystrophy - Diagnosis and Treatment (National Institute of Neurology) "There is no specific treatment for any of the forms of MD. Respiratory therapy, physical therapy to prevent painful muscle contractures, orthopedic appliances used for support, and corrective orthopedic surgery may be needed to improve the quality of life in some cases.""Myotonia is usually treated with medications such as mexiletine, phenytoin, or quinine." 7-04 Muscular Dystrophy - Research (Muscular Dystrophy Canada) "The Muscular Dystrophy Canada Research Zone is where you'll find a wealth of information on neuromuscular study and science. From researcher profiles, to research updates, to a whole section on how the neuromuscular research process works -- you'll find it here, linked together in a detailed web of information." 7-04 Muscular Dystrophy - Research and Support (Muscular Dystrophy Campaign) "The Muscular Dystrophy Campaign is the only UK charity focusing on all muscular dystrophies and allied disorders.""It has pioneered the search for treatments and cures for over 40 years and provides practical, medical and emotional support to people affected by the condition." 7-04 Muscular Dystrophy in Teens (KidsHealth.org) Describes the more common forms of muscular dystrophy that may affect teens. 7-04 Stepanek, Mattie - Poems and Thoughts (CNN) "Mattie Stepanek, the child poet whose inspirational verse made him a best-selling writer and a prominent voice for muscular dystrophy sufferers, died Tuesday of a rare form of the disease. He was 13." 6-04 Stepanek, Mattie - Poems and Thoughts (MyHero.com) "Young Poet and Peacemaker Hero Mattie Stepanek passed away on the morning of June 22, 2004 [at the age of 13 years old]. Mattie’s poems of peace and hope have touched millions of lives, his heartsongs will continue to reach people of all ages around the world for decades to come." A sample of Mattie's work is "Facing the Future": Every journey begins With but a small step. And every day is a chance For a new, small step In the right direction. Just follow your Heartsong. 6-04

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